help for carers
Caring for someone with mental illness can be very demanding on you in many ways – emotionally, physically and financially. Learning how to support yourself when caring for someone will not only help them but also help your family members, friends and yourself.
The latest Carers Census reported that 86% of adult carers and 91% of young carers experienced an impact on their mental health because of their caring role.
Whether you have recently become a carer, have been one for a while, or your caring role has recently ended – it’s important you know what support is available. Given that more than 6 in 10 carers said they need more support to look after their own health and wellbeing, we’ve pulled together all the useful information, resources and support you need to help you in your caring role.
myths about being a carer
I shouldn’t ask for help as it’s my responsibility to care for my loved one
Carers provide invaluable support, but it’s essential to reach out when you need it. Numerous services exist to support carers, and seeking help ensures you can continue caring effectively.
only family members can be carers
Carers can be anyone: friends, neighbours or partners who support someone with a mental health problem or physical needs.
carers don’t have any financial impacts because of their ‘benefits’
Many carers face financial strain due to reduced working hours or covering care-related expenses. This is why there are financial supports and benefits designed specifically for carers, such as the Carer Support Payment. See the Financial Support section below for more details.
positive experiences of being a carer
Although caring can be challenging, it can also be very rewarding. Research shows it can:
- Helps build resilience: Caring can develop your ability to cope in difficult situations, adapt to change and keep pushing through during tough times.
- Supports personal growth: It can help you learn new skills, grow in confidence, and better understand yourself and others.
- Increases gratitude: Caring can help you notice and appreciate the small things in life, value relationships more, and feel greater appreciation for everyday moments.
- Provides stronger sense of purpose: Knowing you are making a positive difference in the life of someone you love can provide meaning to your own life.
FAQs about being a carer and the support available
Stepping into a caring role can bring many changes for your life and it can be tricky navigating all the information without feeling overwhelmed. We’ve put together answers to some of the most common questions and where you can find out more.
In Scotland, there are approximately 800,000 unpaid carers in Scotland, including around 30,000 young carers under the age of 18. Being a carer doesn’t have a specific look: You can be any age, any gender, from any background and you may or may not live with the person you care for.
A carer is someone who must change their lifestyle to care for a family member, partner, friend or neighbour needing long-term support. ‘Caring’ can be:
- Emotional support, such as helping someone seek support for their mental health problem or
- Physical support, such as helping with day-to-day tasks such as cooking, cleaning, attending appointments or personal care.
- Often, it’s a combination of both.
Some people may not know they are a carer or they just see caring for someone as just part of everyday life.
Take the short test to see if you’re an unpaid carer here.
Carers may be at higher risk of developing challenges with their mental health, such as:
Constantly worrying about the person you care for and worries for the future can be overwhelming and exhausting, making it hard to go about your everyday life.
Caring can leave you feeling low, drained or unable to cope. You may lose interest in things you usually enjoy and find everyday tasks feel more difficult. Over time, this can affect your motivation, mood and outlook on life.
Caring often means juggling multiple demands at once, which can feel overwhelming. You may feel pulled in different directions, struggling to keep on top of everything, like ‘spinning too many plates’. This ongoing pressure can leave you feeling tense, exhausted and drained.
It can be hard to switch off from the responsibilities of being a carer, especially when the person you are caring for needs full-time support. However, prolonged stress and overwhelm can lead to feelings of burnout or emotional exhaustion.
Caring for someone means you may have less time to do the things you enjoy – such as spending time with friends or doing hobbies or activities that bring you joy – which can leave you feeling lonely or isolated.
Caring responsibilities may keep you up at night, can mean you have an inconsistent sleep schedule, or cause you to struggle sleeping because of stress or anxiety. Not getting enough good quality sleep can put a strain on your mental health. In fact, 65% of carers find it hard to get a good night’s sleep because of their role.
Caring can take a real toll on your mental health. It’s normal to feel overwhelmed at times. While there’s no single solution, there are simple steps you can take to support your wellbeing and help you feel more in control day to day.
Try to:
- Make time for rest and enjoyment
- Try mindfulness or grounding techniques
- Set boundaries where you can
- Talk to someone – a friend, therapist or support group
- Move your body, eat well and do things that make you feel good
- Write things down – it can help you process emotions.
If you feel you need more support than self-care strategies, you may benefit from more formal support. Speaking to a trained professional can help and they may suggest talking therapies, such as cognitive behavioural therapy (CBT) or acceptance and commitment therapy (ACT). These therapies provide space to talk about your worries and how you’re feeling and can help you explore how caring affects you. Studies show they are particularly useful for anxiety and depression.
Research shows that talking with those who have had similar experiences as you can help you develop effective coping strategies and feel less alone. This can be through one-to-one or group peer support, delivered by people with lived experience of caring. It’s been proven to be more effective as it can be flexible, timely and matched to your unique needs. Read our resource on the importance of peer support.
Change Mental Health delivers a Carer Support service in:
Our Carer Support Workers have expertise and a detailed understanding of the issues that affect carers and people with mental illness through one-to-one emotional support or peer support groups.
An essential part of supporting the person you’re caring for is maintaining effective communication. Sometimes talking to them can be difficult or distressing when you are unsure of what to say and how to say it, especially if the relationship has broken down. In some cases, the person may be withdrawn, confused, angry or not ready to accept help.
Here are some helpful suggestions for communicating when you are a carer:
- Try to listen without judgement and refrain from giving unsolicited advice
- Give them time and space to talk
- Respect their wishes and maintain confidentiality and sensitivity of the topics you discuss
- Let them know you care, even if you don’t fully understand what they are experiencing
- Avoid pressure or ultimatums
- Ask open questions like “What would help right now?” or “Is there anything you want me to know?”
You may feel that it is more important for the person in your care to receive care and support and that you do not need support for yourself. However, research has shown that carers may feel isolated or have poor mental and physical health themselves, Knowing your rightful entitlement as a carer is important.
The Carers (Scotland) Act 2016 guarantees specific rights to carers, including access to support services. Understanding these rights can help ensure that your needs as a carer are met. Among their many rights under the act, carers are entitled to:
- Carer’s Assessments: Assessments to evaluate your support needs.
- Local Authority Support: Local authorities are required to provide resources and services based on your assessment.
- Short Breaks from Caring: Respite care options can help you take necessary breaks from your responsibilities. You can find out more information about short breaks through Shared Care Scotland.
If you’re a working carer, talk to your employer about flexible working or Employee Assistance Programmes (EAPs). You’re protected under the Equality Act of 2010 if you are taking care of someone who is elderly or disabled.
If you are an employer, becoming a Carer Positive Employer is a great first step to support working carers. Being a Carer Positive Employer recognises that there are policies in place to support working carers. Creating a culture of understanding and empathy in the workplace can contribute to a more inclusive and supportive environment for employees who are also carers.
Many carers face financial stress alongside the stress of their caring role. In fact, almost half (48%) of carers have cut back on food and heating to make ends meet. Unfortunately, carers are not typically paid a salary for the care they provide. However, there are financial supports available to help ease some of the burdens associated with caring.
- Carer Support Payment: This payment is available for eligible carers to help cover expenses related to caring duties.
- Carer additional support payment: An additional payment for those who care for more than one person.
- Young Carer Grant: Specifically for carers under 18, this grant provides financial assistance to young carers balancing school or other responsibilities with caregiving.
- CarerSmart discount club: As an unpaid carer, you can sign up to get discounts from high street shops, earn cashback, get discounts on travel or other services, such as legal fees and more!
For more information, the Mental Health and Money Advice website can help you with any financial worries impacting your mental health.
“Quite often when carers come to our service, they’re not thinking about themselves at all. They’re looking to see how best they can support the person they’re caring for. But a key part of our role is helping them see just how important they are in the whole machine.
It’s terrifying for people to try to figure out where to get help, but having someone there to pick that apart with them means they’re not in it alone.”
You can read more from Heather Adamson our Carer Support Worker in Fife in our insight piece.
literature
carers information booklet
In 1999, we launched the Carers Information Pack, packed with factsheets for carers. We’ve made the information more digestible with a 16-page booklet for carers, featuring information from carers’ rights to where and how to get support.
Reach out to communications@changemh.org if you want us to send you hard copies of this booklet.
hear stories from other carers
Sometimes hearing what others have been through and how they overcome their challenges in their own words can resonate with you more deeply. We have stories below of people we support or have supported through Carer Support.
support
Our National Advice and Support Service can help you and people you care for with mental health concerns and money worries.
We can link and signpost you to relevant local and national support, including our own Change Mental Health services, as well as supporting with debt, grants and benefits.
The service is open Monday to Friday, 10am to 4pm (closed for lunch between 12.30pm to 1.30pm). Contact 0808 8010 515, email advice@changemh.org or fill in the form on the service webpage.
For full details about the service, visit the National Advice and Support Service webpage.
Other support
- Carers Trust offers information about local carer and young carer services.
- Carers Scotland offers information, advice and support for the wellbeing of carers.
- Relationships Scotland offers counselling and support services for carers, families, couples and young people.
- Scottish Independent Advocacy Alliance offers individual and collective independent advocacy to people and groups across Scotland.
- You can find a range of local carers centres across Scotland on the Care Information Scotland website.

